Rest and Recovery

Hello fellow spoonies and spoonie loved ones. I hope you all had a good weekend. Did anyone else over do it, over-indulge on Super Bowl food, run yourself down trying to take care of things for game day parties or appearance at a party? Ok, we can all raise our hands together.... ME TOO! I … Continue reading Rest and Recovery

Creeping Along on my Journey

Do you ever feel like the days are just dragging by? As if the time passing was the slow tick of the second hand on an analog clock low on batteries? Or you yourself are low on power so the time isn't really the issue so much as you're running low on power? It can … Continue reading Creeping Along on my Journey

To Swim or Not To Swim? That is not a question!

Hello friends! I hope this finds you all doing well. I've spent a lot of time thinking about my recovery time from this surgery; going over every detail that's not going well, every possible moment in which I messed up the repair... It's not going well and all I can think about is my swimming. … Continue reading To Swim or Not To Swim? That is not a question!

I just cannot understand

Photo by Pixabay on Pexels.com I've written about my daughter many times before, I've written about my best friend, and well since this is her blog you all know her too. I've even written about myself and how I try to be the best support system for them that I can be. What I haven't … Continue reading I just cannot understand

Stress… Stress… and More Stress!

Hello friends... I hope you're all doing well today. I'm sorry I've been absent the last couple of months. Things have been... well... out of control around here. Just a bombardment of appointments, therapies, specialists, home visits, home OT; the list goes on and on! I just wanted to say thank you to every one … Continue reading Stress… Stress… and More Stress!

Research, Research, Research…

Friends, how many of you take to the internet to research your diagnosis? I'm not talking about WebMd (which always seems to tell you it's possibly cancer when you really have a bladder infection, HA) but legitimate research, published studies, specialist's books or articles etc.? I have to admit that I wasn't as dedicated to … Continue reading Research, Research, Research…

When The Darkness Creeps In…

Sometimes when I allow myself to stop and really think about how young I am in conjunction with my list of illnesses I wonder about things like an altered/shorter life span, my quality of life now compared to 8 years ago, I wonder if the pain will ever completely leave my bones. I think of … Continue reading When The Darkness Creeps In…

Inspiration Along My Path…

A HUGE thanks to Des for her guest posts; I hope you all enjoyed them as much as I did. I hope to have her back and writing for us all again soon! I'm finally out of the fog from surgery and can type a little... one-handed and slow, but typing. Thank you for all … Continue reading Inspiration Along My Path…

Surgery

Hello Friends, I had shoulder surgery yesterday and am working on recovering. I hope to be back to writing and sharing with you all soon. In my absence a dear friend of mine and parent of a child with chronic illness is going to share some of her thoughts. Please welcome her to our community … Continue reading Surgery

When the Pain is Too Much…

Fall has descended on our sleepy little mountain town and the constant weather changes are wreaking havoc on my body. I'm having shoulder surgery in 4 days and my to do list is getting bigger while I have less and less ability to get it all done in time. Not to mention the meds you … Continue reading When the Pain is Too Much…