Tag: IV Therapy

Rare Disease Day 2021

Featured by MCAS Mommy, posted in Chronic Illness, Chronic Myofascial Pain, Ehlers Danlos, Fibromyalgia, Hidradenitis Suppurativa, Mast Cell Activation Syndrome (Disease), Orphan Diseases, Parenting with Chronic Illness, POTS/Dysautonomia, Rheumatoid Arthritis

Today is an important day for a lot of chronically ill individuals, especially those with rare diseases. Rare Disease Day used to only be on February 29th but now it's celebrated annually on the last day of February. I took time to reflect on the years that have culminated in each diagnosis, each adding another … Continue reading Rare Disease Day 2021

POTS, Hydration & PICC/CVC Lines

by MCAS Mommy, posted in Chronic Illness, Ehlers Danlos, Mast Cell Activation Syndrome (Disease), Parenting with Chronic Illness, POTS/Dysautonomia, Spoonie Life

My CVC almost all healed up about 10 days after placement. (BARD PowerLine CVC) At my most recent neurology appointment my doctor and I had been discussing my symptoms and this 'flare' of sorts I've been in since having surgery in October. It seems as if the surgery just really aggravated all of my conditions, … Continue reading POTS, Hydration & PICC/CVC Lines