Rare Disease Day 2021

Today is an important day for a lot of chronically ill individuals, especially those with rare diseases. Rare Disease Day used to only be on February 29th but now it's celebrated annually on the last day of February. I took time to reflect on the years that have culminated in each diagnosis, each adding another … Continue reading Rare Disease Day 2021

OH! I Know Someone…

We've all been somewhere, telling a story and that one person says,"Oh, I know someone who_________!" Am I right? Most of the time I just smile politely and think snarky things to myself when someone tells me they know someone with one of my conditions and how barley oat grass cured them or a gluten … Continue reading OH! I Know Someone…

The Sleeping Beast Awakens…

It had been months of agonizing stress waiting for court process after process to finally adopt our children. Nearly 18 months after parental rights had been severed in fact. During those months of stress and worry I was in a constant flare. My body was the remains of a desert rave after the hundreds of … Continue reading The Sleeping Beast Awakens…

All of The Labels and Then Some

Anyone who knows me well, knows I really quite despise labels. I'm not their bio-mom, adoptive mother, foster mom... I'm a MOM. I have a shirt from one of my favorite foster family non-profits that says: Bio, Adoptive, Foster all with a line through them and then MOM in big letters at the bottom. I … Continue reading All of The Labels and Then Some