Rare Disease Day 2021

Today is an important day for a lot of chronically ill individuals, especially those with rare diseases. Rare Disease Day used to only be on February 29th but now it's celebrated annually on the last day of February. I took time to reflect on the years that have culminated in each diagnosis, each adding another … Continue reading Rare Disease Day 2021

Saying No, Healthy Boundaries

"Hey, so I was wondering, since you are so good at it, we would really appreciate your help with something. Can you?" No. "Your the only one we can trust with this, we have no one else, if you don't it won't happen..." No. "Think about the people who will be negitively affected by this, … Continue reading Saying No, Healthy Boundaries