Today is an important day for a lot of chronically ill individuals, especially those with rare diseases. Rare Disease Day used to only be on February 29th but now it's celebrated annually on the last day of February. I took time to reflect on the years that have culminated in each diagnosis, each adding another … Continue reading Rare Disease Day 2021
I had someone ask me the other day if having so many kids was 'smart' since I am a mom with chronic illness. Honestly, I wasn't totally sure what to say and I'm sure there are things that would have been full of kindness and grace, but I found myself saying,"Well, if you found yourself … Continue reading Parenting with Chronic Illness
Hello fellow spoonies and spoonie loved ones. I hope you all had a good weekend. Did anyone else over do it, over-indulge on Super Bowl food, run yourself down trying to take care of things for game day parties or appearance at a party? Ok, we can all raise our hands together.... ME TOO! I … Continue reading Rest and Recovery
Do you ever feel like the days are just dragging by? As if the time passing was the slow tick of the second hand on an analog clock low on batteries? Or you yourself are low on power so the time isn't really the issue so much as you're running low on power? It can … Continue reading Creeping Along on my Journey
Hello friends! I hope this finds you all doing well. I've spent a lot of time thinking about my recovery time from this surgery; going over every detail that's not going well, every possible moment in which I messed up the repair... It's not going well and all I can think about is my swimming. … Continue reading To Swim or Not To Swim? That is not a question!
A HUGE thanks to Des for her guest posts; I hope you all enjoyed them as much as I did. I hope to have her back and writing for us all again soon! I'm finally out of the fog from surgery and can type a little... one-handed and slow, but typing. Thank you for all … Continue reading Inspiration Along My Path…
Fall has descended on our sleepy little mountain town and the constant weather changes are wreaking havoc on my body. I'm having shoulder surgery in 4 days and my to do list is getting bigger while I have less and less ability to get it all done in time. Not to mention the meds you … Continue reading When the Pain is Too Much…
We've all been somewhere, telling a story and that one person says,"Oh, I know someone who_________!" Am I right? Most of the time I just smile politely and think snarky things to myself when someone tells me they know someone with one of my conditions and how barley oat grass cured them or a gluten … Continue reading OH! I Know Someone…
It had been months of agonizing stress waiting for court process after process to finally adopt our children. Nearly 18 months after parental rights had been severed in fact. During those months of stress and worry I was in a constant flare. My body was the remains of a desert rave after the hundreds of … Continue reading The Sleeping Beast Awakens…
Anyone who knows me well, knows I really quite despise labels. I'm not their bio-mom, adoptive mother, foster mom... I'm a MOM. I have a shirt from one of my favorite foster family non-profits that says: Bio, Adoptive, Foster all with a line through them and then MOM in big letters at the bottom. I … Continue reading All of The Labels and Then Some
A Journey to Wellness 